The Prostatitis Foundation

Prostatitis Support Phone Bank

 

For questions and comments about this website, or the Prostatitis Foundation, email us at info@prostatitis.org.

6-17-2015: We have decided to discontinue the 800 number and ask patients to come directly to the webpage (prostatitis.org) to get prostatitis information and visit the prostatitis forum . The costs of maintaining the eight hundred number plus the costs of shipping, and handling of information packets became too much for our small staff. When we started this foundation twenty years ago about twenty percent of the population was connected to the internet. Now less than twenty percent of people do not have internet access. We need to adapt to the changing technology.

We will be adding a lot of additional information to the webpage as rapidly as we can get it done. Please be patient with us while we are in restructuring mode. Remember all officers and directors are unpaid volunteers and several are former patients.

Prostatitis Foundation
1063 30th Street
Smithshire, IL 61478
www.prostatitis.org
info@prostatitis.org

MEN WITH PROSTATITIS WILLING TO BE CALLED : Remember these patients are not doctors and cannot give medical advice. They are volunteers willing to share some of their medical history and what they have learned as patients. The Prostatitis Foundation cannot accept responsibility for any information acquired from this list of sources as the foundation does not endorse any doctor, medicine or treatment protocol. Make all decisions by consulting with your doctor.

PROSTATITIS SUPPORT PHONE BANK
REVISED 6/20/11

PROSTATITIS WEB PAGE: http://www.prostate.org

MEN WITH PROSTATITIS WILLING TO BE CALLED:

Name: John Cortez
Los Angeles, CA
Email: johnmcortez@live.com
Phone: 562-686-3126
D.O.B.: 11-29-73
Age condition started: 30
Sypmtoms: Burning, Aching, Rectal Pain, discomfort in bladder
Willing to discuss all areas.

Frank Cardillo
Philadelphia, PA
Evening Phone: 610-237-9128
No Email
Best time to call: Between 6 and 10 pm, Eastern time and day/evenings on weekends
Birthdate: Born 1952
Age at onset: 45
Chief complaint: back and rectal pains; shooting pains; pains in thighs; malaise; lack of energy or sex drive.
Willing to discuss: All areas. Has seen Dr. Polacheck in Tucson and willing to discuss treatment options he's had.

Ron Kinner
Altamonte Springs, FL
Evening: 407-772-0630
Best time to Call: 7-10 pm (Eastern Time) on Mondays, Tuesdays, and Thursdays
Birthdate: 10-1-46
Age at Onset: 40
Chief Complaint: None now. Was painful urination, sitting pain, pain during/after
ejaculation, burning between legs. He is a specialist in DIY Prostate Drainage, but
willing to talk about anything.

Roger Proulx
Drummondville, P.Quebec, Canada
Day Phone: 514-546-2771 (Eastern Time)
Evening/Weekends 819-477-9468 (Eastern Time)
Current Age: 59
Age at Onset: 53
Chief Complaint: Rectal and perineum pain; frequent necessity to void
Willing to discuss all areas of illness.

Clark Hickman
St. Louis, Missouri
Email Address: Hickman@umsl.edu
Birthdate: 6-5-53
Age at Onset: 25
Chief Complaint: burning, aching, feeling like gland is swollen
Willing to Discuss: all areas

Kenneth Felt
Utah
Day Phone: (801) 538-6663
Evening Phone: (801) 487-9107
Email: hledo.kfelt@state.ut.us
Birthdate: 3-25-47
History of Prostatitis: 10 years, usually treated with antibiotic. Recent flareup added testicular pain and pain in seminal vesticles and vas deferens.
Ken is also a computer analyst, able to help people get into the WWW and newsgroups.

Edward Tierney
Long Island, NY
Day & Evening Phone: (516) 859-0401
Best Time to Call: 9 am to 9 pm Eastern Time
Birthdate: 6-17-36
History of Prostatitis: 4 months
Chief Complaint: Pain (frequently unable to sit)

Desiderio Maex
Santa Fe, New Mexico
Birthdate: 1946
History of Prostatitis: Off and on 2 years; recurrent
Phone: 505-438-0153 (home/land line)
Phone: 505-501-0476 (cell)
Best time to call: Before 10 pm Mountain Time.
Chief Symptoms: Penile pain, burning, pain in rectum

Name: Gary Itzkowitz
Tel#: 609-927-4607
D.O.B.: 12/10/1955
Age condition started: 51
Primary Symptoms: Pain and feeling like gland is swollen; pain on sitting; frequency in urination; in the past, painful and burning when urinating; bladder feeling full.
Willing to discuss: All areas

 

NATIONAL & INTERNATIONAL EXPERTS

INFERTILITY EXPERTS:

R.S. Jeyendran, D.V.M., Ph.D.
Director, Andrology Laboratory Services, Inc.
680 N. Lake Shore Dr., Ste. 1025
Chicago, IL 60611

Attila Toth, M.D.
65 East 79th St.
New York, New York 10021
(Leading published physician on infectious causes of infertility)

Dr. John K. Crister
Center for Reproduction and Transplantation Immunology
Methodist Hospital of Indiana, Inc.
1701 N. Senate Blvd.
Indianapolis, IN 46202

 

MICROWAVE EXPERTS:

Eric Poincelet (Engineer)
Technomed Medical Systems
Parc d'activite' du Chene
Bd des Drolts de l'Homme
69500 Bron - France

C. Servadio, M.D.
Department of Urology
Beilinson Medical Center
Petah Tiqva
Sackler School of Medicine
Tel Aviv University
Tel Aviv, Israel

J.J.M.C.H. de la Rosette, M.D., Ph.D.
Geert Grooteplein 16
P.O. Box 9101
6500 NB Nijegen
The Netherlands

 

NIH CONTACTS:

Leroy Nyberg, Jr., Ph.D., M.D.
Director, Urology Programs NIH/NIDDK/KUH
Natcher Building, Room 6AS.13G
45 CENTER DR MSC 6600
Bethesda, MD 20892-6600
Phone: 301-594-7717
FAX: 301-480-3510
email: leroy_nyberg@nih.gov

 

ORGANIZATIONS:

Roy Schwartz, M.D.
Senior Vice President
American Medical Association
515 N. State Street
Chicago, IL 60610
Phone: 312-464-4370

Thomas Bruckman
Executive Director
American Foundation for Urologic Disease
300 W. Pratt Street, Suite 401
Baltimore, MD 21201
Phone: 410-727-2908
FAX: 410-528-0550

Claude Gerard
Founder and President
American Prostate Society
1340 Charwood Rd., Ste. F
Hanover, MD 21076
Phone: 410-859-3735
FAX: 410-850-0818

AHCPR:

Information and Publications Division
18-12 Parklawn Bldg.
Rockville, MD 20857
Phone: 301-594-1364

American Urological Association
1120 North Charles St.
Baltimore, MD 21201
Phone: 401-727-1100

National Center for Health Statistics
Room 1064
7525 Belcrest Rd.
Hyattsville, MD 20782

Marilyn Hennessy
President, The Retirement Research Foundation
8765 W. Higgins Rd., Ste. 401
Chicago, IL 60631-4170
Phone: 312-714-8080

Walter R. Dowdle, Ph.D.
Acting Director
Centers for Disease Control
1600 Clifton Road Northeast
Atlanta, GA 30333

 

PATHOLOGISTS:

Paul Fugazzotto, M.D.
4021 Wonderland Dr.
Rapid City, SD 57702
605-342-8989
(Interstitial Cystitis urine testing)
(will do testing by mail with a kit)

 

SEXUALLY TRANSMITTED DISEASE EXPERTS:

D. Taylor Robinson
Division of Sexually Transmitted Diseases
Clinical Research Center
Watford Rd.
Harrow, Middlesex HA1 3UJ
UK
(this researcher is in the U.S. now. Very important person in this field. Is the one who proved that Ureaplasma causes prostatitis. His current USA address is unknown).

 

UROLOGISTS:

Ivo Tarfusser, MD
Corso Liberta 63
39012 Merano (BZ)
Italy
Phone: +39 473 237312
FAX: +39 473 237319
Email: summit@em.parsec
EXCELLENT HOMEPAGE: http://www.parsec.it/summit/p0.htm

Richard E. Berger, M.D.
Professor of Urology
Mail Stop RL-10
1959 NE Pacific
Seattle, WA 98195

Luc Baert
Belguim
(Published first paper on intraprostatic injection, still very concerned about prostatitis)

Prof. Dr. Kurt G. Naber
Urologische Klinik
Elisabeth Krankenhaus GmbH
St. Elisabeth Strasse 23 - 94315 Straubing
Postfach 0453 - D-94304 Straubling
Telephone: 09421/7101700

Prof. A. Pfau, M.D.
Department of Urology
Hadassah Medical Center
PO Box 12000
Jerusalem, 91120 Israel
Phone: 011-972-2-776-6873 (Clinic)
FAX: 011-972-2-434-434

Robert Flanigan, M.D.
Chairman of Urology, Loyola Medical Center
2160 S. First Ave., Bldg. 54, room 203
Maywood, IL 60153
Phone: 708-216-4076

Dr. John Krieger
University of Washington
School of Medicine/RL-10
Seattle, WA 98195
Phone: 206-543-3769
FAX: 206-543-3898
(Does state of the art prostatitis research!)

Dr. Richard Alexander
Department of Urology
University of Maryland
email: ralexander@surgery2.ab.umd.edu

R. Sharifi, MD., FACS
Professor of Urology
University of Illinois Hospital
840 South Wood St.
Chicago, IL 60612
Office: 312-996-6622
Clinic: 312-996-6835

Mark S. Litwin, M.D., M.P.H.
UCLA (Urology)
Box 951738
Los Angeles, CA
Phone: 310-206-8183
or 310-794-7700

Timothy D. Moon, M.D.
University of Wisconsin, Division of Urology
G5/341
600 Highland Ave.
Madison, WI 53792
Phone: 608-263-1359
FAX: 608-263-0454

J. Curtis Nickel, M.D.
Department of Urology
Queen's University
Kingston General Hospital
Phone: 613-549-1436
FAX: 613-545-1970

Durwood E. Neal, Jr., M.D.
University of Texas - Galveston
Division of Urology
301 University Blvd., 5310 OJS E40
Galveston, TX 77550
Phone: 409-772-2091
FAX: 409-772-5144

Dr. Linda M. Dairiki Shortliffe
Department of Urology
S-287
Stanford University Medical Center
Stanford, CA 94305

Dr. Luis Durier
(Office address unknown but is in
Toronto, Ontario, Canada)
(Very knowledgeable about prostatitis)

Ananias Diokno, M.D.
William Beaumont Hospital
Royal Oak, MI
313-551-0387

Aaron Kirkemo, M.D.
Henry Ford Hospital
Detroit, MI
313-876-7660

Niall T. M. Galloway, M.D.
Emory Clinic
Atlanta, GA
404-248-4898

Burton Andersen
Chief, Infectious Disease
909 CSB (M/C 787)
840 S. Wood St.
Chicago, IL 60612-7323
(white cell and antibiotic penetration expert)

 

WORLD HEALTH ORGANIZATION PHYSICIANS:

International Consultation on Urological Disease (ICUD)
Professor Saad Khoury
Secretary
Department of Urology
Hospital de la Pitie
83 Boulevard de l'Hopital
75013 Paris
France
Phone: 33 1 45 70 38 62
FAX: 33 1 45 70 30 78

International Consultation on Urological Disease (ICUD)
45 Eric Sasselaan
2020 Antwerp
Belguim

Professor L.J. Denis
International Consultation on Urological Disease (ICUD)
Department of Urology
AZ Middelheim
Indenrireef
2020 Antwerp
Belguim
FAX: 32-3-218-46-96

 

.........................................................................................
We're sorry you are having to learn about prostatitis, but we're glad you came here, because we think we can help. Please be advised that the Prostatitis Foundation does
not warrant, support, sponsor, endorse, recommend or accept responsibility for any health care provider or any treatment or protocol performed by any heath care provider.

© The Prostatitis Foundation
.........................................................................................

 
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